The Ethical and Validity Conundrum in Epilepsy Research in LMIC Settings
Loading...
Date
2023
Authors
Samia, Pauline
Shah, Adeel
Patel, Archana
Olielo, Philip
Mudave, Lionel
Gwer, Samson
Journal Title
Journal ISSN
Volume Title
Publisher
Frontiers
Abstract
In the last few decades, research in epilepsy has significantly improved understanding of
risk factors and etiologies associated with epilepsy, promoting greater access to interventions
and medications that have improved health-related outcomes for patients. However, these
advances and benefits are not being felt evenly on a global scale due to significant inequalities
in access to and utilization of research resources and expertise in Low-and Middle-Income
Countries (LMICs).
To promote effective research output, and advance evidence-based practices; the context,
disease burden, and challenges that hinder good research need to be re-defined and
addressed. This is key in facilitating implementation of coherent priorities and strategies in
epilepsy research in LMICs; and in facilitating the conduct of scientifically and ethically valid
research. This paper explores the capacity, ecosystem, and ethical issues that are at play and
that need to be addressed to support better evidence generation and utilization in epilepsy
care in LMICs.
Description
Article
Keywords
ethics, sustainable collaborations, epilepsy, low-middle-income-countries, research
Citation
Samia, P., Shah, A., Patel, A., Olielo, P., Mudave, L., & Gwer, S. (2023). The ethical and validity conundrum in epilepsy research in LMIC settings. Frontiers in Neurology, 14, 1196261.